We are so excited to be back in Cleveland and that Ali recovered so well from the last surgery. We left LPCH Monday morning to what seemed like a parade route thru the CVICU with all the nurses and RT's waving bye and Ali blowing kisses. The flight was uneventful for Ali but Gavin was tired and putting up a good fight for a nap! The flight and medical crew were great! (Thank you AeroCare - Peggy and Sarah!) We were welcomed back in the Cleveland Clinic PICU with a bunch of hugs from the nurses and RT's! Everyone was so excited that Ali is doing so well - and of course Ali was waving and blowing kisses to everyone!
So the plan is for Ali to be assessed in the PICU, try to switch her over from IV to oral diuretics, and then switch her to a Long Term Vent, and then be transfered to the Children's Rehab Hospital. At Rehab Shawn and I will learn to operate the vent, take care of her trach, set up home nursing, and get Ali back on a schedule. Ali will also receive all her therapies at Rehab - PT, OT, and Speech. The whole process at Rehab will take 4-6 weeks and we hope to be transfered sometime next week.
We can't wait to all be at HOME again!
P.S. Check out the new pics - clink the link on the right of the page!
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