Monday, November 22, 2010

This is officially the longest we have been home and without major hospitalizations! Ever since Ali came home in March 2009 - we have been home for 20 months! WooHoo! It is amazing to see how much Ali has grown and thrived while at home...this really is a healing place.

Since the last update earlier this year...Ali has been completely off the vent 24/7 for the last 4 months, is walking with the assistance of orthotics and a walker, vocalizing more (I love hearing her laugh...and of course her favorite is 'dadada'!), pulls herself up and climbs onto the kitchen chair to sit with us at the table, is sleeping in a big girl bed (we converted her crib into a toddler day bed), and is eating! - she likes to try just about everything we eat - her favorites are Cheerios, mandarin oranges, pasta with sauce, pretzels, and she drinks water form a sippy cup.  She recently ate an entire scheduled feed by mouth!   Ali is in PreK class at school this year. She has so much fun at school and all the kids love to be around her and “help” her. We are so amazed with Ali's progress.



Gavin celebrated his 3rd Birthday this past Saturday. I can't believe he is 3 years old already...where did the time go? Gavin is really into Thomas the Train and Buzz Lightyear from the Toy Story movie.  Gavin really enjoys playing with his cousins and trying to be a ruff and tough boy!  He has shown a big interest in wanting to help with Ali and most of the time he is gentle with her, but when he is not he will go up and give her a hug and say “sorry sissy, I love you”.



We are very blessed and grateful to have two amazing children!  
Shawn and I celebrated our 7 year Wedding Anniversary with a 6 day cruise to the Western Caribbean! Shawn surprised me on Mother's Day with the tickets for the cruise that departed on our anniversary. This was my first cruise and Shawn spoiled me!  



I have uploaded about 20 new albums of pictures from this year! Click here to see what we've been doing!
On a final note, I wanted to share some information about me.  In early October I was diagnosed with Breast Cancer.  To put it mildly this has been quite a shock for us, but we have been through difficult times in the past and we will handle whatever may come from this.  There has been a seemingly endless amount of tests and doctor appointments but I feel that we have put together a great team with a great plan for my surgery.  I am preparing to have a bilateral mastectomy followed by reconstruction surgery on December 2nd at the Cleveland Clinic.  This is a complicated procedure and I will be in the hospital for about 5 to 7 days followed by a 6 week recovery at home.  I will keep everyone updated and Shawn will post a blog update a few days after my surgery.  
I hope everyone is doing well and have a Happy Thanksgiving, we all have so much to be thankful for!       

4 comments:

  1. So enjoyed the update and seeing that darling little girl free of the assistive things of the past. What a fighter she is. She must get that from you so my prayers are with you as you fight the cancer. Please call if you need anything.

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  2. I will read this to my Mom b/c she's not a blogger (and that's an understatement!). But do you have a printed version, or is there a way I can print out the blog to send her a hard copy via snail mail?
    Thanks for the updates ~ you are in our prayers.
    Warm Thanksgiving Wishes to Everyone!

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  3. We are soo thrilled to see these pictures of Ali, and are incredibly encouraged by all her progress. She and M seem to have a somewhat similar journey.
    But we are even more thankful that you posted about your diagnosis so that we can know how to PRAY for you and the family. You all are fighters, and remain as an inspiration to the rest of us.
    Sending lots of love, hugs, and prayers,
    the Nelsons

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  4. I love you Selena and family! Shawn, Ali, and Gavin are very lucky. I will pray for peace and courage in the next month. Thank you for sharing. Beth Schilens

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