Monday, November 22, 2010

This is officially the longest we have been home and without major hospitalizations! Ever since Ali came home in March 2009 - we have been home for 20 months! WooHoo! It is amazing to see how much Ali has grown and thrived while at home...this really is a healing place.

Since the last update earlier this year...Ali has been completely off the vent 24/7 for the last 4 months, is walking with the assistance of orthotics and a walker, vocalizing more (I love hearing her laugh...and of course her favorite is 'dadada'!), pulls herself up and climbs onto the kitchen chair to sit with us at the table, is sleeping in a big girl bed (we converted her crib into a toddler day bed), and is eating! - she likes to try just about everything we eat - her favorites are Cheerios, mandarin oranges, pasta with sauce, pretzels, and she drinks water form a sippy cup.  She recently ate an entire scheduled feed by mouth!   Ali is in PreK class at school this year. She has so much fun at school and all the kids love to be around her and “help” her. We are so amazed with Ali's progress.



Gavin celebrated his 3rd Birthday this past Saturday. I can't believe he is 3 years old already...where did the time go? Gavin is really into Thomas the Train and Buzz Lightyear from the Toy Story movie.  Gavin really enjoys playing with his cousins and trying to be a ruff and tough boy!  He has shown a big interest in wanting to help with Ali and most of the time he is gentle with her, but when he is not he will go up and give her a hug and say “sorry sissy, I love you”.



We are very blessed and grateful to have two amazing children!  
Shawn and I celebrated our 7 year Wedding Anniversary with a 6 day cruise to the Western Caribbean! Shawn surprised me on Mother's Day with the tickets for the cruise that departed on our anniversary. This was my first cruise and Shawn spoiled me!  



I have uploaded about 20 new albums of pictures from this year! Click here to see what we've been doing!
On a final note, I wanted to share some information about me.  In early October I was diagnosed with Breast Cancer.  To put it mildly this has been quite a shock for us, but we have been through difficult times in the past and we will handle whatever may come from this.  There has been a seemingly endless amount of tests and doctor appointments but I feel that we have put together a great team with a great plan for my surgery.  I am preparing to have a bilateral mastectomy followed by reconstruction surgery on December 2nd at the Cleveland Clinic.  This is a complicated procedure and I will be in the hospital for about 5 to 7 days followed by a 6 week recovery at home.  I will keep everyone updated and Shawn will post a blog update a few days after my surgery.  
I hope everyone is doing well and have a Happy Thanksgiving, we all have so much to be thankful for!       

Wednesday, March 24, 2010

One year ago today...



Ali came home from a 9 month hospital stay that included a trip to CA for an open heart surgery. We can't believe how Ali has grown in the past year! She is getting so strong - crawling everywhere, climbing the stairs, pulling to stand, walking with assistance, and off the vent for 4 hours a day! I am working on a video of Ali on the move. Can't wait to share it with you!


March 24, 2009















March 24, 2010

Monday, January 11, 2010

Ali's 4th Birthday

HAPPY 4th BIRTHDAY ALI!

We are so happy that Ali was able to celebrate her 4th birthday! It was just a year ago that she had returned home from CA after yet another heart surgery and was admited into Children's Rehab. Ali has gotten so strong this past year and although still on the vent she is very busy moving around, it doesn't hold her back! Ali really enjoys going to school and playing with her peers. We didn't know what the year would bring after we returned home from CA - but we are so happy that Ali is such a fighter and was able to overcome her infections and recover from heart surgery. Check out all the latest pictures HERE.

Here are a few pictures of Ali on her birthday since her birth.


Ali was born 1/10/2006 @ Metro Hospital


Ali's 1st Birthday 1/10/2007 (before any surgeries)


Ali's 2nd Birthday 1/10/2008 (after 2 heart surgeries durning the last year)


Ali's 3rd Birthday @ Children's Rehab (a few months prior, we didn't know if this day would come)


Ali's 4th Birthday 1/10/2010